The ACSC have led multiple statewide, large-scale funded survivorship care projects, with the broad aim of improving cancer survivorship care across Victoria. This page describes various projects that the ACSC have led after receiving external funding. This page also includes information about the Victorian Cancer Survivorship Program (VCSP).
Embed and spread optimal cancer survivorship care across Victoria 2020-2022
The information below provides a summary of activity and results of the Embed and spread optimal cancer survivorship care across Victoria (Embed and spread) project. This project was funded by the Victorian Government from 2020 – 2022 and incorporated Project 1: Virtual roadshow and baseline survey, and Project 2: Expansion of mycareplan.org.au.
Project 1: Virtual roadshow and baseline survey (September 2020 – March 2022)
- Delivered webinars on cancer survivorship care to 20 Victorian health services
- Collected baseline data on cancer survivorship care practices from 20 health services and provided a summary report with recommendations to enhance care
- Supported 7 services to implement a survivorship quality improvement initiative
- Collected follow-up data to evaluate project impact
The Victorian Survivorship Care Data Report 2022 provides de-identified comparative statewide data of the 20 Victorian health services that participated in the baseline site survey, as part of the Embed and spread project. The report includes data on:
- Models of survivorship care
- Use of survivorship care plans
- Information provision
- Assessing survivorship issues
- Availability of services to support survivorship issues
- Collection of survivorship outcomes
- Strengths and challenges with the provision of survivorship care
Project 2: Expansion of mycareplan.org.au (February 2021 – December 2021)
Expanded mycareplan.org.au to from 3 to 6 cancer types, now available for: early stage breast, early stage bowel, localised prostate, early-stage melanoma, uterine cancer (endometrial), non-Hodgkin lymphoma (diffuse large B-cell).
Baseline site survey
Responses were collected from all sites and collated into a report.
- 111/472 (24%) attendees completed evaluation surveys following the webinars.
- 97% (108/111) rated the webinar as good, very good or excellent
- 98% (109/111) reported an increase in knowledge and awareness of survivorship care
- 99% (110/111) said they would like use information from the webinar when caring for survivors.
Summary report with recommendations
This report summarised a selection of findings from the site’s baseline survey and offered six key recommendations for the site to consider implementing to enhance the survivorship care they were already providing. Recommendations were similar for each site, could be readily adopted, and took into consideration each sites current levels of resourcing. Recommendations broadly focused on:
- Referral to mycareplan.org.au to support SCP development
- Information provision, including referral to the Common Survivorship Issues Directory
- Referral to Cancer Council 13 11 20
- Referral to their local Cancer Council Cancer Wellness Program
- Completion of survivorship professional development, including Cancer Survivorship; an online introductory course for cancer survivorship hosted on eviQ Education.
Tailored implementation support was provided to seven sites from August 2021 to January 2022. It involved two project officers at the ACSC remotely supporting sites to implement a survivorship care quality improvement initiative. Quality improvement initiatives across these sites broadly focused on information provision, the implementation of survivorship appointments and the evaluation of established survivorship clinics.
The follow-up survey sought feedback from all sites on the recommendations provided in the summary report, and any perceived changes in survivorship care awareness, knowledge and confidence at the site after participating in this project. Sites that participated in the implementation phase of the project also received survey questions evaluating its effectiveness.
- 100% (10/10) of sites agreed that their involvement in the project raised awareness of survivorship care at their site
- 100% (10/10) agreed or strongly agreed that their involvement in the project increased awareness of survivorship resources available and how to access them
- 90% (9/10) agreed that their involvement in the project increased knowledge about survivorship.
Final site report
An individualised final site report was provided to the 18 sites (data from 3 sites within a precinct combined) in March 2022. This report provided state-wide comparative data of responses to select questions from the baseline site survey, so sites could compare their responses to other services across Victoria. Data was de-identified, with each site able to identify only their response. Regional and metropolitan site data comparisons were provided for select questions. The report also included a summary of the follow-up survey data, including de-identified state-wide comparative data of responses.
The project has expanded the current mycareplan.org.au interface to include an additional three cancer types. It allows users to produce comprehensive and evidence-based SCPs for
- early-stage melanoma,
- non-Hodgkin lymphoma (diffuse large B cell (DLBCL))
- uterine cancer (endometrial).
These complement the existing SCPs for
- early stage breast,
- early stage bowel
- localised prostate cancer.
The project was delivered within a ten month time frame, on time and within budget.
The Embed and Spread project team were committed to working with NGOs to achieve optimal care and outcomes for cancer survivors in addition to this being a key deliverable in this project. Reference groups were formulated and engagement with stakeholders was undertaken.
Research, content development and refinement
Comprehensive research and core content development was undertaken. Relevant national and international evidence based clinical guidelines and information were used. Members for each reference group contributed expertise, assessed content and guided refinement. As a result, six databases were developed. Two for each cancer type housing detailed and relevant ‘Treatment’ and ‘Well-being’ sections.
Design and web development
The usage metrics have been updated to provide more details on sessions and users by region and cities. This is available for all six cancer types available on and can be tracked monthly. Further personalisation of the care plan allows survivors to add their staging details to their cancer diagnosis.
Comprehensive targeted user testing
65 testers were recruited, 30 consumers and 35 subject experts. Consumer and subject experts indicated side effects information, well-being and self-help information as relevant and the care plan easy to download and share.
User testing undertaken showed that for those who responded:
- 100% (65/65) indicated mycareplan.org.au as easy to use
- 97% (62/64) indicated the language as easy to understand
- 94% (60/64) would recommend the site to others
- 90% (27/30) of consumers were highly satisfied with the care plan generated
- Consumer and subject experts indicated side effects information, well-being and self-help information as relevant and the care plan easy to download and share.
All feedback was assessed. Decisions made were undertaken by consensus with reference groups and the project team. Changes included:
- Increased linkages to primary and community-based services
- Content refinement
- Expansion of the psychosocial content to include loss of self, impact on carers plus finances /return to work sections
- Addition of optional staging section
Promotion and Go-live
Promotion and dissemination
A communication and promotion plan was developed and undertaken in two phases announcing the expansion of mycareplan.org.au to include three new cancer types and announcing go-live and available for use.
Pivotal to the project’s success was the robust establishment phase, comprehensive research and content refinement, collaboration and engagement with reference group members and external stakeholders and a comprehensive targeted user testing. Key highlights of this project included 1) developing partnerships and working relationships with multiple stakeholders and 2) strong evaluation data.
The project team acknowledge the support of all health professionals, consumers and experts who have helped to develop and achieve this valuable resource.