Expect Exploration Patient Experience Communication Clinical Drug

This study comprised two components: a Cross-sectional survey to understand patient experience of clinical drug trials across the participation trajectory, and a comprehensive unit evaluation 

About this study 

The Parkville Cancer Clinical Trials Unit (PCCTU) is the largest clinical trials unit in Australia, with over 120 research staff working across 10 multidisciplinary clinical trials teams to provide research support for patients enrolled in trials across Peter Mac, Royal Melbourne Hospital, and the Royal Women’s hospital. 

This unit is growing exponentially with the rise of immunotherapies and other novel treatments. It is the unit's priority to ensure that care provided to participants on trial remains of high quality during this time of rapid growth. 

This study was therefore conducted to help the PCCTU review current patient care and communication practices to understand key areas of strength and opportunities for improvement. Outputs of this work will guide ongoing unit strategy development, and consumer engagement projects. 

Aim 

Conducted within Health Service Research, the aim of EXPECT is to: 

  1. explore patient experience and perspectives of clinical drug trials, particularly the communication with the PCCTU team 
  2. describe communication strategies currently being employed by PCCTU staff with both patients and internal stakeholders 
  3. evaluate these strategies across key domains of health system performance: effectiveness, appropriateness, efficiency, and quality 

Sponsor 

  • Peter MacCallum Cancer Centre 

Funding 

  • Parkville Cancer Clinical Trials Unit 

Principal investigator 

Ms Amelia Hyatt 

  • Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 

Project team 

  • Project Lead: Rowan Forbes Shepherd 

  • Research Support: Ashleigh Bradford 

Project status 

  • Completed 

Contact details 

Ms Amelia Hyatt 

  • Phone: (03) 8559 7837 

  • Email: This email address is being protected from spambots. You need JavaScript enabled to view it.