Advances in knowledge of genetic risk and growing public awareness of testing options, has resulted in an increasing number of adolescents and young adults (AYAs) accessing genetic services for the assessment of hereditary cancer risk. Individuals presenting for genetic testing are supported by genetic counsellors; professionals primarily trained to working within adult-centred models of care. Increasing evidence highlights practice complexities faced in genetics work with AYAs including those related to engagement/communication, client versus family centred models of care, adherence and ethics. Evidence also illustrates deficits in education for genetic counsellors working with this client group. Youth friendly genetic counselling is a new and emerging field characterised by this practice complexity and increasing understanding of the unique implications of genetic counselling on AYA psychosocial wellbeing. This research has seen the development of a youth friendly model of genetic counselling and program of education for those working in the field.
SPONSOR
Peter MacCallum Cancer Centre
Funding
Peter MacCallum Cancer Foundation
Principal Investigator/s
Ms Kate Thompson
Contact details
Ms Kate Thompson
Email: [email protected]
Publications & presentations
Thompson, K. Holland, L. &Young, M A. (2014)A Model of Youth Friendly Genetic Counselling, Teenage Cancer Trust International Conference, London, UK
Holland, L. & Young, M.A (2014) A Youth Friendly Model of Genetic Counselling, Human Genetics Society of Australasia, Queenstown, New Zealand.
