INSPIRE: Telephone genetic counselling model facilitating decision-making about clinically significant research results

We have designed a model of telephone genetic counselling to facilitate the return of genetic information to research participants. We wish to understand the feasibility and acceptability of the inclusion of telephone-based genetic counselling in the notification process of returning clinically significant research results to research participants.

Principal Investigator/s

Mary-Ann Young

Contact details

Dr Laura Forrest

Email: [email protected]

Publications & presentations

Forrest LE, Young MA. Clinically Significant Germline Mutations in Cancer-Causing Genes Identified Through Research Studies Should Be Offered to Research Participants by Genetic Counselors. J Clin Oncol. 2016 Mar 20;34(9):898-901. Epub 2016 Jan 19.

14th International Meeting on the Psychosocial Aspects of Hereditary Cancer May 2015 Manchester United Kingdom

Familial Cancer Research and Practice Annual conference Kingscliff NSW August 2015