ICCon database

The ICCon partnership is a collaboration connecting all Australian Familial Cancer Centres (FCCs), seeking to improve the outcomes of people with rare inherited cancers

One role of the ICCon partnership is to establish a national database of individuals found to have gene faults or mutations causing an increased risk of cancer. Databases such as this enable researchers to investigate the causes of diseases and how best to treat and/or prevent them. Data has already been collected by the FCC (Familial Cancer Centre) or genetic clinic that did the genetic test. The FCC forwards the data to the ICCon database, so no contact is required between the ICCon database, and the individuals included in the database. Examples of information stored in the database include gene mutation type, year of birth, cancer diagnosis (if applicable). A complete list can be obtained by contacting the Central ICCon Coordinator. 

Funding 

Cancer Council NSW (New South Wales) 

Principal investigator 

Associate Professor Paul James 

Contact details 

Ms Elisa Cops 

  • Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  • Phone: (03) 8559 5327 

Ms Lyon Mascarenhas 

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  • Phone: (03) 8559 6189 

Project group 

Familial Cancer Research Centre 

Project status 

Ongoing