The ICCon partnership is a collaboration connecting all Australian Familial Cancer Centres (FCCs), seeking to improve the outcomes of people with rare inherited cancers. One role of the ICCon partnership is to establish a national database of individuals found to have gene faults or mutations causing an increased risk of cancer. Databases such as this enable researchers to look into the causes of diseases and how best to treat and/or prevent them. Data has already been collected by the FCC or genetic clinic that did the genetic test. The FCC forwards the data to the ICCon database so no contact is required between the ICCon database and the individuals included in the database. Examples of information stored in the database include: gene mutation type, year of birth, cancer diagnosis (if applicable). A complete list can be obtained by contacting the Central ICCon Coordinator.
Funding
Cancer Council NSW
Principal Investigator/s
Associate Professor Paul James
Contact Details
Ms Elisa Cops
Email: [email protected]
Phone: 03 8559 5327
Ms Lyon Mascarenhas
Email: [email protected]
Phone: 03 8559 6189
Publications & presentations
James P, Petelin L, Campbell I, Dawkins H, Fox S, Hiller J, Kirk J, Lindeman G, Macrae F, Mascarenhas L, McGaughran J, Meiser B, Morrow A, Nichols C, Pachter N, Saunders C, Scott C, Poplawski N, Thrupp L, Trainer A, Ward R, Young Mary-Anne, Mitchell G. The Inherited Cancer Connect (ICCon) mutation-carrier database. Poster Session: COSA’S 41st Annual Scientific Meeting; 2014 Dec 2-4; Melbourne, Australia
Petelin L, Campbell I, Dawkins H, Fox S, Hiller J, James P, Kirk J, Lindeman G, Macrae F, Mascarenhas L, McGaughran J, Meiser B, Pachter N, Saunders C, Scott C, Suthers G, Trainer A, Ward R, Young MA, ICCon Collaborators and Mitchell G. ICCon Familial Cancer Database. Poster Session: Familial Aspects of Cancer 2014 Research and Practice; 2014 Aug 12-15; Kingscliff, Australia
