Annual review program for gene carriers

The Familial Cancer Centre (FCC) provides long term clinical and psychological support to patients with inherited cancer predisposition syndromes through an established Annual Review Program (ARP).

The ARP involves mailing patients a clinical questionnaire on an annual basis to identify any unmet medical or psychosocial needs and to ensure adherence to a cancer risk management program.

This project will evaluate the ARP to determine whether the program is meeting patient’s needs as well as addressing the potential cost-effectiveness of the ARP.


Cancer Council NSW

Principal Investigator/s

Ms Lucinda Hossack

Contact details 

Ms Lucinda Hossack
Email: [email protected]

Publications & presentations

Hossack L, Rasmussen V, Young MA, Forrest L, Shanahan M, Hunt C, Mascarenhas L, Michael- Lovatt C, Shanley S, Harris M, Mitchell G. How empowered do carriers of hereditary gene mutations participating in an Annual Review Program feel about managing their cancer risk? Familial Aspects of Cancer 2015 Research and Practice; 2015 Aug 25-28; Kingscliffe, Australia