Survivorship Connections: A model of youth-friendly survivorship care

This project aimed to implement and evaluate a model of survivorship care for AYAs aged 15-25 with cancer in Victoria and evaluate its appropriateness, acceptability and sustainability. The project involved: developmentally appropriate screening; care-coordination; fostering acute/primary partnerships; care-planning and; regular reviews. Evaluation comprised outcome measures including needs assessments (AYA Survivorship Screening Tool), quality of life (AQoL-6D), general health and well-being (SF-12) and program acceptability and sustainability. Measures were completed at baseline (treatment completion) and 3, 6, 9 and 12 months post. The needs/experience of carers of were also explored.

Sponsor

Peter MacCallum Cancer Centre

Funding

Victorian Department of Health & Human Service

Principal Investigator/s

Ms Kate Thompson

Manager: ONTrac At Peter Mac Victorian Adolescent And Young Adult Cancer Service

Contact Details

Ms Kate Thompson

Principal Investigator

Email: [email protected]

Publications & presentations

Thompson, K (2015) The development of a Survivorship pathway in AYA oncology, YCS International Conference, Sydney.

Orme, L. & Thompson, K. (2014) Survivorship in AYA Cancer Care, Australian & New Zealand Children’s Oncology Group, Sydney.

Thompson, K. & Holland, L. (2014) Developmentally Targeted Survivorship Care, Oncology Social Work Australia ASM, Adelaide.

Thompson, K. (2014) Screening, Assessment & Care Planning in Adolescent & Young Adult Cancer Survivorship, Blood New Zealand Winter Congress, New Zealand.