Survivorship and Living Well after Cancer Research

Located within Cancer Experiences Research, our Survivorship and Living Well after Cancer program focuses on research that aims to better understand the issues that survivors experience and their needs, and aims to develop and test interventions to improve survivors' wellbeing. Our research also seeks to develop sustainable models of healthcare delivery for cancer survivors.

Research focus

  • Better understand the experience and needs of cancer survivors
  • Better understand the experience and needs of caregivers
  • Develop resources to meet the information needs of survivors and caregivers
  • Understand patterns of care in the post-treatment phase
  • Understand and address disparities in patient outcomes and experiences
  • Understand barriers to referral to evidence-based interventions for survivors including to healthy lifestyle interventions
  • Determine the most effective ways to incorporate critical elements of survivorship care into clinical practice, including use of survivorship care plans, needs assessment and risk stratification
  • Understand barriers to implementation of models of post-treatment care
  • Explore novel models of post-treatment care

Program Lead

Professor Michael Jefford

Professor Michael Jefford is a medical oncologist and Director of the Australian Cancer Survivorship Centre, a Richard Pratt Legacy. Michael’s research focus is on understanding cancer survivors’ needs, experiences and patterns of care with the goal of developing effective and sustainable models of post-treatment survivorship care.

Email: [email protected]

Research Projects

This content is currently being updated.

Opportunities for students

We are currently recruiting an Honours student to commence in 2020 for a project titled “How do we define and measure optimal care for cancer survivors?”

The aims of this project are to define standards of quality survivorship care and develop a set of measurable quality indicators using systematic review and a Delphi process. Outcomes will be used to benchmark current practice and facilitate service improvement across Victoria.

Please contact Dr Karolina Lisy ([email protected]) for more information.

Publications & presentations

2019

The survivorship experience for patients with metastatic melanoma on immune checkpoint and BRAF-MEK inhibitors. Lai-Kwon J, Khoo C, Lo S, Milne D, Mohamed M, Raleigh J, Smith K, Lisy K, Sandhu S, Jefford M.

Identifying the most prevalent unmet needs of cancer survivors in Australia: a systematic review. Lisy K, Langdon L, Piper A, Jefford M.

Building Personalized Cancer Follow-up Care Pathways in the US: Lessons Learned from Implementation in England, Northern Ireland, and Australia. Alfano CM, Jefford M, Maher J, Birken SA, Mayer DK.

A longitudinal study of four unique trajectories of psychological distress in cancer survivors after completing potentially curative treatment. Lotfi-Jam K, Gough K, Schofield P, Aranda S, Jefford M.

Patient-reported outcomes of sexual and gender minority cancer survivors in Australia. Lisy K, Ward A, Schofield P, Hulbert-Williams N, Bishop J, Jefford M.

2018

The current state of cancer rehabilitation in Australia. Lisy K, Denehy L, Chan RJ, Khan F, Piper A, Jefford M.

Experiences and unmet needs of lesbian, gay and bisexual people with cancer care: a systematic review and meta-synthesis. Lisy K, Peters MDJ, Schofield P, Jefford M.

Developing written information for cancer survivors from culturally and linguistically diverse backgrounds: lessons learnt. Wiley G, Piper A, Butow P, Schofield P, Douglas F, Roy J, Nolte L, Jefford M.

2017

SCORE: Shared care of Colorectal cancer survivors: protocol for a randomised controlled trial. Jefford M, Emery J, Grunfeld E, Martin A, Rodger P, Murray AM, De Abreu Lourenco R, Heriot A, Phipps-Nelson J, Guccione L, King D, Lisy K, Tebbutt N, Burgess A, Faragher I, Woods R, Schofield P.

Provider Roles in Survivorship Care: Moving Beyond Surveys of Patient Preference (letter). Lisy K, Emery JD, Jefford M.

Improving care for cancer survivors. Expert Review of Quality of Life in Cancer Care. Lai-Kwon J, Jefford M.

A rapid review of needs assessment tools for post-treatment cancer survivors. Jiao M, Hall AE, Nolte L, Piper A, Jefford M. 

Transforming Cancer Survivorship Care: An Australian Experience. Kinnane NA, Piper A, Wiley G, Nolte L, Evans J, Jefford M.

Patient-reported outcomes in cancer survivors: a population-wide cross-sectional study. Jefford M, Ward AC, Lisy K, Lacey K, Emery JD, Glaser AW, Cross H, Krishnasamy M, McLachlan SA, Bishop J.

How will cancer survivors use survivorship care plans? Kinnane N, Piper A, Jefford M.

2016

The Impact of Survivorship Care Planning on Patients, General Practitioners, and Hospital-Based Staff. Nolte L, Kinnane N, Lai-Kwon J, Gates P, Shilkin P, Jefford M.

Development and evaluation of an online educational resource about cancer survivorship for cancer nurses: a mixed-methods sequential study. Shaw T, Yates P, Moore B, Ash K, Nolte L, Krishnasamy M, Nicholson J, Rynderman M, Avery J, Jefford M.

A clinical placement program for primary care professionals at a comprehensive cancer centre. Evans J, Nolte L, Piper A, Simkiss L, Whitfield K, Jefford M.

The ProCare Trial: a phase II randomised controlled trial of shared care for follow-up of men with prostate cancer. Emery JD, Jefford M, King M, Hayne D, Martin A, Doorey J, Hyatt A, Habgood E, Lim T, Hawks C, Pirotta M, Trevena L, Schofield P.

A randomized controlled trial of a nurse-led supportive care package (SurvivorCare) for survivors of colorectal cancer. Jefford M, Gough K, Drosdowsky A, Russell L, Aranda S, Butow P, Phipps-Nelson J, Young J, Krishnasamy M, Ugalde A, King D, Strickland A, Franco M, Blum R, Johnson C, Ganju V, Shapiro J, Chong G, Charlton J, Haydon A, Schofield P.

2015

Healthy Living after Cancer: a dissemination and implementation study evaluating a telephone-delivered healthy lifestyle program for cancer survivors. Eakin EG, Hayes SC, Haas MR, Reeves MM, Vardy JL, Boyle F, Hiller JE, Mishra GD, Goode AD, Jefford M, Koczwara B, Saunders CM, Demark-Wahnefried W, Courneya KS, Schmitz KH, Girgis A, White K, Chapman K, Boltong AG, Lane K, McKiernan S, Millar L, O'Brien L, Sharplin G, Baldwin P, Robson EL.

Implementing novel models of posttreatment care for cancer survivors: Enablers, challenges and recommendations. Jefford M, Kinnane N, Howell P, Nolte L, Galetakis S, Mann GB, Naccarella L, Lai-Kwon J, Simons K, Avery S, Thompson K, Ashley D, Haskett M, Davies E, Whitfield K.

"I might not have cancer if you didn't mention it": a qualitative study on information needed by culturally diverse cancer survivors. O'Callaghan C, Schofield P, Butow P, Nolte L, Price M, Tsintziras S, Sze M, Thein T, Yiu D, Mireskandari S, Goldstein D, Jefford M.

Psychological distress, quality of life, symptoms and unmet needs of colorectal cancer survivors near the end of treatment. Russell L, Gough K, Drosdowsky A, Schofield P, Aranda S, Butow PN, Westwood JA, Krishnasamy M, Young JM, Phipps-Nelson J, King D, Jefford M.