Women with metastatic breast cancer (WMBC) report many unmet supportive care needs that impact quality of life and disease outcomes. Despite increasing numbers of publications describing the burden of unmet need, there has been no published research documenting the development of an evidence-based, consumer-informed supportive care resource. This study has been split into 2 phases.
Phase 1
The aims of phase 1 were;
- To explore what supportive care gaps exist for WMBC; and
- To identify supportive care resources already available and valued by WMBC.
Phase 1 is now completed. The results have informed the next part of the study.
Find out more about the phase 1 results of this study.
Phase 2
This study is now in phase 2. The aim of Phase 2 is to develop a signpost initiative comprising of a resource designed to direct women to relevant supportive care organisations, and their resources, that can help WMBC throughout their cancer care. The signpost resource will be developed with input from a comprehensive range of stakeholders, implemented for 3 months and then evaluated.
The aims of phase 2 are to:
- Develop a signpost resource;
- Pilot the initiative for 3 months at 4 hospitals, and
- Evaluate the feasibility and sustainability of implementing the signpost initiative.
Funding
National Breast Cancer Foundation
Principal Investigator/s
Professor Mei Krishnasamy
Contact details
Prof Mei Krishnasamy
Chair in Cancer Nursing | Department of Nursing
University of Melbourne Centre for Cancer Research
VCCC Research and Education Lead – Cancer Nursing
Email: [email protected]
