AMSR: Advanced melanoma support resources

This is a cross-sectional, exploratory study using interviews to gain an understanding of the experiences, needs and supportive care requirements of;

  • Patients with stage 3 or 4 melanoma (advanced melanoma) who have completed, or are receiving systemic treatment, and
  • Their carers/friends.

The aim of this study was to identify specific characteristics (person-centred and disease focused) that may direct how and when needs and support requirements can be met and by whom. The study also aimed to develop supportive interventions (e.g. information resources and coping strategies) to address needs and thereby facilitate attainment of the best possible treatment outcomes.

Methodology

Participants provided basic demographic information and were then invited to participate in a semi-structured interview. The interview explored participants views on the type of support needed, when it is needed, how it is best provided and by whom.

The information we collected will be used to inform the development and implementation of supportive care interventions that will ultimately help improve the quality of life of patients with melanoma and the people caring for them at home.

Participants

Two groups of participants were recruited into this study:

  • Patients with stage III or IV melanoma
  • The people caring for the patient at home (carers/friends)

Sponsor

Peter MacCallum Cancer Centre

Funding

Bristol-Myer Squibb

Principal Investigator/s

Dr Donna Milne

Contact details

Dr Donna Milne

Principal Investigator

Email: [email protected]

Ms Alex Billett

Researcher

Email: [email protected]

Publications & presentations

We will be publishing the results of our study soon. Please check back with us for more details.