EmQuest - Identifying factors which predict for health-related quality of life deficits and increased symptom burden in women who have been treated for endometrial cancer.
We are inviting all women who were diagnosed with endometrial cancer at least six months ago to take part in a study to better understand the concerns and challenges faced by women who have been treated for endometrial (uterine/womb) cancer, particularly in this new era where chemotherapy is now commonly used to treat this disease. This study is supported by the Australia New Zealand Gynaecological Oncology Group (ANZGOG).
We know that following diagnosis and after finishing treatment for endometrial cancer, most women have a number of unique health needs. In the short term, they are often troubled by side-effects of their treatment and worried about the risk of their cancer coming back. For some women, side-effects may persist or new health problems might arise in the longer term. We also know that many women experience emotional and physical problems after cancer that can affect their quality of life.
We would like to better understand how common these types of issues are in order to assist in developing interventions and treatments to address the needs and concerns of women who have completed endometrial cancer treatment. It would be very helpful if you could take the time to complete a survey to share your thoughts on all these important issues.
What is involved?
If you agree to participate you will be asked to complete an online survey about the ways that endometrial cancer has affected your life. There are also questions about your type of tumour, what treatments you have received, and other health conditions you might have. It is fine if you don’t know all the answers, and you can either choose this option, or leave blank. It should take approximately 20-30 minutes of your time. Your completed survey will be submitted directly to our research team, so your cancer care team won’t be aware of your responses. Participation in this study will not cost you anything. If you do decide to participate, you may withdraw from the study at any time without giving a reason. You may also choose not to answer any questions that you are asked in the survey.
Confidentiality and disclosure of information
All information you give us will be kept strictly confidential and will be stored according to strict privacy guidelines.
If there is anything you do not understand, or you have questions, please contact Dr Nikki Burdett, one of the researchers, by telephone on +61 03 8559 5000 or by email: [email protected]. Feel free to discuss it with your family, friends or General Practitioner if you find it helpful.