This webpage has been developed for the Medical Oncology Group of Australia. The content and information is suitable for medical oncologists.
Survivorship background
- The US Institute of Medicine published its seminal report, From Cancer Patient to Cancer Survivor, Lost in Transition, in 2006.
Australian survivorship statistics
- Cancer Council Australia factsheet: Australians living with and beyond cancer in 2040
- Cancer Council Australia website: Facts and figures
- Australian Institute of Health and Welfare: Cancer data in Australia 2019. This report presents cancer incidence, mortality, survival and prevalence statistics using data from 1982 to 2015 and projections up to 2021 for cancer incidence and mortality.
- Cancer Australia: Cancer incidence, mortality and survival in Australia (Edcan Learning Resources)
Survivorship issues
- Identifying the most prevalent unmet needs of cancer survivors in Australia: a systematic review, 2019
- Patient-reported outcomes in cancer survivors: a population-wide cross-sectional study, 2017
Guidance documents
- Cancer Australia: Principles of Cancer Survivorship, 2017
- COSA: Model of Survivorship Care, 2016
- COSA: Position statement on cancer survivorship care, 2019
- COSA: Exercise in cancer care, 2019
Other Australian resources
- Australian Cancer Survivorship Centre: Directory of guidelines web page
- Australian Cancer Survivorship Centre: Resources, tools, fact sheets for health professionals
- Survivorship care plan generator: mycareplan.org.au
- Australian Cancer Survivorship Centre: Common survivorship issues directory
- Flinders University: Work after Cancer
State cancer control plans
Victoria
- Survivorship considerations are included in the current Victorian Cancer Plan 2016-2020
- A key deliverable is the Victorian Cancer Survivorship Program. In the current phase, 24 projects were funded ($4m) over 2016-2019
New South Wales
- Survivorship considerations are included in the current NSW Cancer Plan
South Australia
Tasmania
Queensland
- Cancer care state wide health service strategy 2014 (10 year plan)
Northern Territory
Western Australia
Recommended websites
Guidance documents
- American Society of Clinical Oncology (ASCO): Guidelines on survivorship care (US)
- American Cancer Society (ACS): Survivorship care guidelines (US)
- National Comprehensive Cancer Network (NCCN): Clinical practice guideline in oncology (register to access free guidelines) (US)
Other international resources
- American Society of Clinical Oncology (ASCO): Survivorship compendium (US)
Recommended websites
- Macmillan Cancer Support (UK)
- American Cancer Society (US)
- ASCO Cancer.Net (US)
- Livestrong (US)
Resources
- Cancer Council Australia booklet: Living Well After Cancer, A guide for cancer survivors, their families and friends
- ACSC factsheet: Improving care and support for cancer survivors
- ACSC factsheet: Questions you may wish to ask about the time after treatment
- ACSC factsheet: Survivorship care plans: what are they and how can you use them
- ACSC factsheet: Fear: Coping with the fear of your cancer coming back
Resources in other languages
Cancer Council Australia booklet in 9 different languages: On the road to recovery
Recommended websites – Australia
- Australian Cancer Survivorship Centre: For Survivors and carers
- Australian Cancer Survivorship Centre: Common Survivorship Issues Directory
- Cancer Council Australia: After cancer treatment
- Cancer Council NSW: Living well after cancer
- Canteen: Life after treatment
- Flinders University: Work after Cancer
Recommended websites – International
- Macmillan Cancer Support: Life after cancer treatment (UK)
- American Cancer Society: Survivorship: During and after treatment (US)
- Cancer.Net: Survivorship (US)
- Springboard Beyond Cancer: Manage Cancer – Your Way (US)
A number of medical oncologists have established survivorship services. These may differ in terms of the type of services they provide and models of care they support.
If you run a survivorship service and would like it added to this page please contact MOGA at [email protected].
A number of long-term follow-up and late effects services are available.
These include long-term follow up for paediatric survivors as well as services for adults who had cancer in childhood or adolescence, and adult survivors of adult cancers.
Victoria
- Peter Mac has a Late Effects service, for adult survivors of childhood cancers, as well as adult survivors of adult haematological diseases
If you run a late effects service and would like it added to this page please contact MOGA at [email protected].
