Peter MacCallum Cancer Centre (Australia)
www.petermac.org
This website does not have information on specific diseases, but describes the patient care services provided at Peter Mac.
Adventures of Captain Chemo (UK)
www.royalmarsden.org/captchemo
This website is from the Royal Marsden Hospital, UK. It provides information on childhood cancers written for children and young adults with cancer. There are two versions of information, one for younger children and one for teenagers. The character, Captain Chemo, is a much loved superhero and his adventures are an interactive and educational computer game. Participants follow Captain Chemo and his crew, who are named after cancer treatments, on a journey through the body to seek out and destroy cancer cells. Progress through the game is made by answering questions about cancer and playing a number of shooting games that aim to destroy the tumour. There are links to the Royal Marsden information pages to find answers to questions.
American Cancer Society (US)
www.cancer.org
This website contains comprehensive information on all cancer, including both general and detailed information on the related treatments. When you enter the site, there is a box on the top of the left hand side of the page ‘Select Cancer Type’. Select the cancer type you are looking for and click on ‘Go’
Breast Cancer Network (Australia)
www.bcna.org.au
Breast Cancer Network Australia’s role is to ‘empower, inform, represent and link together’ Australians personally affected by breast cancer. It is driven by women who have themselves experienced breast cancer and represents more than 18,000 breast cancer survivors nationally. Their Mission is
- to inform women using a wide range of well-researched resources, directly or by referral to other appropriate agencies.
- to empower women to have a voice in their own health care and to play an active role in improving breast cancer treatment, care and services.
- to represent Australians affected by breast cancer in the health care system, scientific community, media and wider public.
- to be driven by women who have themselves experienced breast cancer and link together individuals and groups sharing similar issues and experiences.
Cancer BACKUP (UK)
www.cancerbackup.org.uk
Cancer BACKUP is a United Kingdom national cancer information and support service. The website provides up-to-date information on the different types of cancer, and treatments as well as providing access to their publications.
Cancer Information Network (US)
www.cancernetwork.com
This website aims to provide health professionals and patients with access to up-to-date cancer information and the results of current research in full text articles from medical journals. The site is divided into patient and professional areas. The patient has a newsletter and reports on recent studies in medical journals
Cancer Institute NSW (Australia)
www.cancerinstitute.org.au
The Cancer Institute of NSW is a statutory body funded by the NSW State Government. The Institute's objectives include improving the quality of life for cancer patients and their carers, and to provide expert advice to patients, the public, health care professionals, and the government. The site's information for patients, families and carers includes support services, accommodation and transport, and complementary therapies. It also lists Australian and international sites dedicated to cancer and related issues.
Canteen (Australia)
www.canteen.org.au
Canteen is the Australian Organisation for Young People Living with Cancer. Membership is free; however you need to be aged between 12 and 24. There are three categories of membership, patient members: have or have had cancer; sibling members: brothers or sisters of a person who has or has had cancer; offspring members: young people with a parent or primary carer who has or has had cancer. Canteen’s mission is to support, develop and empower young people living with cancer. This is done by providing an Australia-wide peer support network of young people who are living with cancer. For more information about Canteen and its programmes visit the website.
Carers Victoria (Australia)
www.carersvic.org.au
Carers Victoria is a state-wide organisation. They offer direct services to support carers in their caring role, as well as education and training and advocacy programmes to increase the awareness of carers and carers’ issues.
DIPEx: Patient Experiences of Health and Illness (UK)
www.dipex.org
DIPEx shows a wide variety of personal experiences of health and illness. “Being told you have an illness can be confusing and frightening and finding reliable information can be frustrating.” On this site you can watch, listen to or read their interviews and find reliable information on treatment choices. The site covers cancer and teenage cancer plus other health areas.
Health Translations Directory Australia
www.healthtranslations.vic.gov.au
The Health Translations Online Directory is a database of links to health information that has been translated into languages other than English. Visitors to the site are able to search for health information by topic and by language. Search results will include a listing of resources in the relevant languages as well as a summary of each resource, the format, details of the target audience, date of production and review.
Leukaemia Foundation of Australia
www.leukaemia.com
The Leukaemia Foundation is a not-for-profit organisation that aims to provide information and support to patients and their families living with leukaemia, lymphoma, myeloma and related blood diseases. This website includes their publications on the different diseases and treatments in a number of languages. It also has information on the support services the organisation provides in Victoria, including practical assistance with accommodation and transport.
www.talkbloodcancer.com
(Leukaemia Foundation’s online support and information forum)
A moderated virtual support group for patients, families, and carers living with leukaemia, lymphomas, myeloma and other related blood disorders—allows participation in discussion forums with others going through similar situations related to blood cancers and their treatment.
Leukaemia Research Fund (UK)
www.lrf.org.uk/
The Leukaemia Research Fund is a charity dedicated to research and the treatment and support of patients and families living with leukaemia, the lymphomas, myeloma, anaplastic anaemia, myelodysplasia, myeloproliferative disorders and related blood disorders in both adults and children. Their publications on the different diseases and treatments are on this website which also has information on clinical trials and links to other relevant websites.
National Breast Cancer Centre (Australia)
www.nbcc.org.au
This website was established by the Australian Government in response to community concerns about the cost of breast cancer. They have now expanded their work into ovarian cancer. They provide comprehensive and easy to read information to help women with breast or ovarian cancers understand their diagnosis, treatment and support options. Their booklets are based on the latest national and international evidence. They also produce information for non-English speakers and for the families of women with breast cancer. See also www.breasthealth.com.au
National Cancer Institute (US)
www.cancer.gov
The NCI’s comprehensive cancer website contains information for patients and health professionals on the different types of cancer, staging and treatments. A wide range of issues including relationships, sexuality and coping with life after treatment are addressed under ‘Coping with cancer’. The site also contains information on clinical trials.
National Centre for Complementary and Alternative Medicine (US)
www.nccam.nih.gov
NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science therapies and disseminating authoritative information to professionals and the public. The National Institute of Health conducts research into complimentary and alternative therapies and available research findings are on their website.
Palliative Care Victoria (Australia)
www.pallcarevic.asn.au
Palliative Care Victoria develops and provides information to help people living with life-threatening illnesses and their families, and for health care professionals. In the information for the public section ‘Helping someone who is receiving palliative care’ has been developed for those who provide care for someone also receiving palliative care in Victoria. However, all the information is designed to assist any reader to understand some of the challenges faced by those with a life limiting illness. You may find answers to many of your questions about palliative care using this site. To the left of the home page is a navigation tree divided into eight categories. There is access to all of the Palliative Care Victoria publications.
Quackwatch (US)
http://www.quackwatch.org/
Quackwatch is a non-profit corporation whose purpose is to combat health-related frauds, myths, fads, fallacies, and misconduct. Its primary focus is on quackery-related information that is difficult or impossible to get elsewhere. Founded by Dr. Stephen Barrett in 1969 as the Lehigh Valley Committee Against Health Fraud, it was incorporated in 1970. In 1997, it assumed its current name and began developing a worldwide network of volunteers and expert advisors. There is a comprehensive section on questionable cancer therapies.
The Cancer Council Victoria (Australia)
www.cancervic.org.au
The Cancer Council Victoria is a not-for-profit organisation that funds cancer research and provides the community with a wide range of cancer services. Its website has comprehensive information and publications on different cancer types, treatment and symptom management in several languages. Victorian support services are also listed, including ways to access relevant cancer support groups and financial assistance.
The Leukemia and Lymphoma Society (US)
www.leukemia-lymphoma.org
The Leukemia and Lymphoma Society is a voluntary health organisation dedicated to funding blood cancer research, as well as providing education and support services in the U.S for leukaemia, lymphoma and myeloma patients’ and their families. The website is very comprehensive, and includes their publications on the different diseases and treatments. It also has answers to frequently asked questions, recent publications, clinical trials and research findings.
University of Pennsylvania (US)
www.oncolink.upenn.edu
This website was set up by cancer specialists at the University of Pennsylvania to provide access to comprehensive information about specific cancer types, treatments and research. It is easy to access.
Virtual Cancer Centre (Australia)
www.virtualcancercentre.com
The virtual cancer centre delivers the latest information on cancer. The information is updated every 12 hours. It displays detailed health and medical information concerning cancer diseases, drugs, symptoms, investigations & treatments. Featured is current cancer news, a cancer library and glossary. Other features include new and emerging treatments, research and clinical trials, patient support and links to other organisations. |
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