Useful links and resources
Useful links and further information - cancer survivorship
| Further information |
Long-term follow-up and late effects clinics in Australia. |
Victoria |
| A review service for young adult survivors of childhood cancer; staffed by a team of child and adult specialists with expertise in the medical, psychological and social fields; aims to prevent, detect, educate about and provide support and treatment for problems that may arise in this group of survivors. Contact details: Peter MacCallum Cancer Centre, St Andrews Place East Melbourne VIC 3002. Contact: Priscilla Gates, Haematology Late Effects Nurse Coordinator, 03 9656 5854 (Haematology), Natalie Goroncy, Solid tumours and CNS Late Effects Nurse Coordinator, 03 9656 1060 |
|
| Held on the last Friday of each month 9.30am-12.30pm This clinic welcomes referrals for patients who are more than two years (disease free) following autologous or allogeneic Stem Cell Transplantation. The clinic aims to improve the health of long term survivors of transplantation targeting a range of late effects including physical, social and psychological concerns. Contact details: Phone 9076 3451 Fax referrals to 9076 2298 Please note: This clinic is an MBS-Billed Clinic. Please address referrals to a specific Haematologist. Contact: Dr Sharon Avery, Malignant Haematology and Stem Cell Transplantation Physician |
|
| Supports and facilitates the transition from curative treatment through surveillance and on to the 'survivorship' phase of the cancer journey; aims to provide a clear and consistent standard of long-term follow-up care, which is responsive to the needs of childhood cancer survivors and their families. Contact details: Royal Children’s Hospital, 50 Flemington Rd Parkville VIC 3052 (Clinics at Royal Children’s Hospital, Monash Medical Centre and Regional Outreach) Contact: Susan Skinner, Clinical Nurse Coordinator, 03 9322 5182 |
Queensland |
|
| A long-term follow-up service for survivors of childhood and adolescent cancer; offers a comprehensive long-term follow-up service including a personalised cancer management summary and long-term follow-up recommendations; accepts referrals for one-off reviews, transfer of care or simply for a patient to get an end-of-treatment patient management summary. Contact details: Queensland Children’s Cancer Centre, Royal Children’s Hospital, Herston Rd Herston QLD 4029. Contact: Aaron Thompson, Clinical Nurse Consultant 07 36365513 |
Western Australia |
|
| Sees patients from five years post treatment and monitors them for possible late effects of their treatment of childhood cancer; patients are seen yearly up until the age of 18 or until they complete secondary school, whichever comes first, they are then transitioned to an adult facility or the care of their GP. Also refers patients to other specialty services such as endocrinology, cardiology and dentistry. Contact details: Princess Margaret Hospital for Children, Roberts Road Subiaco WA 6008 Contact: Kerrie Wells, Long-term Follow-up Coordinator 08 9340 8031 |
New South Wales |
|
| Contact details: John Hunter Children’s Hospital Lookout Rd New Lambton NSW 2305 Contact: Lyndal Moore, Late Effects Coordinator 02 4985 5415 or 02 4985 5180 |
|
| Contact details: Sydney Children’s Hospital High St Randwick NSW 2031 Contact: Karen Johnston, Clinical Nurse Consultant 02 9382 1741 |
|
| Contact details: John Hunter Hospital Room 6148 E Block Locked Bag 1, Hunter Region Mail Centre NSW 2310 Contact: Lyndal Moore Clinical Nurse Educator/ Late Effects Coordinator Page: 5657 Phone: (02) 49 855415 Fax: 02) 49585605 |
Other Australian organisations |
| Aims to better educate consumers and health professionals about male reproductive health disorders. Contact details: PO Box 5418 Clayton VIC 3168 C/O Monash Institute of Medical Research. Phone: 1300 303 878. |
| Aims to raise awareness of lung disease, to promote lung health and to provide education and support services for those impacted by lung disease. Contact details: 44 Brookes St Bowen Hills QLD 4006 PO Box 847, Lutwyche QLD 4030. Phone: 07 3251 3600, 1800 654 301. |
| Aims to reduce the incidence and impact of disorders of the brain, spinal cord and nervous system through the provision of support, community education and research. Contact details: Suite 21 Regent House, 37–43 Alexander Street Crows Nest NSW 2065 PO Box 579 Crows Nest NSW 1585. Phone: 02 9437 5967, 1300 886 660. |
| A national organisation for Australians affected by breast cancer. Aims to make sure that people diagnosed with breast cancer and their families get the best information, treatment, care and support. Contact details: 293 Camberwell Rd Camberwell VIC 3124. Phone: 03 9805 2500, 1800 500 258. |
| Works with the cancer organisations in each state and territory to improve early detection, treatment, care and support for people affected by cancer. Contact details: GPO Box 4708, Sydney, NSW 2001 Level 1, 120 Chalmers Street Surry Hills NSW 2010. Phone: 02 8063 4100. |
| Provides support, information, and resources to young people aged 12 to 24 who are living with cancer. Contact details: Level 6, 235 Clarence St Sydney NSW 2000 GPO Box 3821 Sydney NSW 2001. Phone: 02 9262 1022 |
| CNSA is committed to achieving and promoting excellence in cancer care through the professional contribution of nurses through education, information, leadership, networking and professionalism. |
| Contact details: GPO Box 4708 Sydney 2001, NSW. Ph: (02) 8063 4100. E: info@cnsa.org.au |
| Provides care and support to patients and families living with leukaemias, lymphomas, myeloma and related blood disorders and funds research into these disorders. Contact details: GPO Box 9954 in your capital city. Phone: 1800 620 420 |
| Aims to encourage early diagnosis of melanoma and to raise community awareness of the damaging effects of UV radiation. Contact details: 212 Edward Ford Building A27 University of Sydney NSW 2006. Phone:02 9351 2036 |
| A national information source and support service for those diagnosed with breast and/or ovarian cancer; aims to improve cancer care and the wellbeing of those diagnosed with breast or ovarian cancer. Contact details: Level 1, Suite 103 355 Crown Street Surry Hills NSW 2010. Phone:02 9357 9400 |
| The Paediatric Integrated Cancer Service (PICS) was established in 2004 as part of the Victorian State Government’s ‘Caring for Children’ package and is now part of the Victorian Government's broader cancer reform strategy, |
| Contact details: Children’s Cancer Centre, The Royal Children’s Hospital, 6th Floor, Main Building, 50 Flemington Road Parkville, VIC 3052. Ph: 03 9345 4433. |
| A national body for prostate cancer in Australia; aims to support, raise awareness and fund research into prostate cancer and its treatment. Contact details: PO Box 1332 Lane Cove NSW 1595 Phone:02 9438 7000, 1800 220 099 |
International resources |
| Provides professional support services to those affected by cancer: people with cancer, caregivers, children, loved ones and the bereaved. |
| Looks for new ways to raise awareness, increase outreach and facilitate collaboration in an effort to improve the cancer experience; offers support and information for cancer survivors. |
| Provides high-quality, up-to-date cancer information for cancer patients, their families and carers and is a source of support, helping with things that people affected by cancer want and need. |
