Below are links to a range of Survivorship related information. Drop in it to the Australian Cancer Survivorship and Information Centre if you would like further information or if you have any questions or concerns about the information you have.
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Click here for general support information or treatment related information.
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| In the Australian Cancer Survivorship and Information Centre - A Richard Pratt Legacy, we have a range of DVDs for patients, families and friends. Some are available for loan whilst others can be viewed in the centre.
The Survivorship DVDs that we have available are:
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| - Just take it day to day: a guide to surviving life after cancer
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| To watch this DVD online click this link >>
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Reliable Website Information
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| Information about your diagnosis and treatment can help you understand your disease and help you make decisions. There is a lot of information about various cancers and treatments available on the internet. Some of this is well researched and provides good information but some of it may not be correct.
When you read health information from the internet it is always important to ask the following questions. The answers to these questions will help you to decide if the information you are reading is reliable and up-to-date.
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| - Who wrote the information and what are their qualifications?
- Where did the information come from?
- When was it written?
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| Peter Mac does not guarantee the accuracy, completeness or timeliness of the information provided by these organisations. We encourage you to discuss any information you have found on the listed sites or other sites with your health care team.
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| For information about other reliable cancer websites click this link. This page contains links to websites such as Cancer Council Victoria, Canteen, Carers Victoria, MacMillan Cancer Support (UK) and Palliative Care Victoria as well as many others. On some these sites you can find information about specific cancers and cancer treatment, in particular the MacMillan Cancer Support (UK) site.
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Recommended Survivorship Website:
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy is a web-based centre. It is funded by Peter MacCallum Cancer Centre, The Pratt Foundation and the Victorian Department of Health. The Australian Cancer Survivorship Centre aims to help improve services and care for cancer survivors in Australia as well as focus on increasing awareness, especially about issues that affect survivors after their treatment ends. The information on this site is divided into four sections Health Professionals, Survivors, Family & Friends and Research. There are links to useful information and reliable websites.
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National Coalition for Cancer Survivorship (NCCS)
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The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the USA the Coalition aims to empower cancer survivors.
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Cancer Survival Toolbox
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The NCCS' Cancer Survival Toolbox is a free self-learning audio program intended to help people develop important skills to better meet and understand the challenges of their illness.
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Lance Armstrong Foundation (LAF)
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The Lance Armstrong Foundation believes that in the battle with cancer, unity is strength, knowledge is power and attitude is everything. Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF provides practical information and tools for people living with caner.
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National Cancer Institute (USA) Facing Forward Series: Life after Cancer Treatment
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The mission of the Office of Cancer Survivorship (OCS) is to enhance the quality and length of survival of all persons diagnosed with cancer and to minimize or stabilize adverse effects experiences during cancer survivorship. The Office of Cancer Survivorship conducts and supports research that both examines and addresses the long and short term physical, psychological, social and economic effects of cancer and its treatment among the pediatric and adult survivors of cancer and their families.
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Dana Farber Cancer Institute
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The mission of Dana-Farber Cancer Institute is to provide expert, compassionate care to children and adults with cancer while advancing the understanding, diagnosis, treatment, cure and prevention of cancer and related diseases.
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American Society of Clinical Oncology: People Living with Cancer - Survivorship
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The People Living with Cancer webpage provides cancer information about survivorship, as well as survivor stories, information and rehabilitation.
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Cancer Directory (Australia)
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This website is managed and maintained by NSW Cancer Council. It aims to make it easier to access credible cancer care resources from around Australia that have been published since 2000. The information covers a range of cancer-related subject areas and target audiences:
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- all common cancer types
- prevention, screening, early detection, treatment, advanced cancer, palliative care
- coping with cancer, including psychological needs such as emotional and practical support, grief loss, communication
- for women, men, children, adolescents, Aboriginal and Torres Strait Islander peoples, people from other culturally and linguistically diverse communities, people with disabilities and health professionals.
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Publications
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Institute of Medicine report “From Cancer Patient to Cancer Survivor: Lost in Transition"
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From Cancer Patient to Cancer Survivor focuses on survivors of adult cancer during the phase of care that follows primary treatment. The book raises awareness of the medical, functional, and psychosocial consequences of cancer and its treatment. It defines quality health care for cancer survivors and identifies strategies to achieve it. The book also recommends improvements in the quality of life of cancer survivors through policies that ensure their access to psychosocial services, fair employment practices, and health insurance.
This publication is available for purchase from book stores nationally.
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