www.petermac.org/cancersurvivorship/Home
| The Australian Cancer Survivorship Centre
| The Australian Cancer Survivorship Centre aims to improve health outcomes for cancer survivors, and provides timely and relevant information on important issues related to cancer survivorship.
| www.cancerconnections.com.au
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Cancer Connections (Australia)
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Cancer Connections is a Cancer Council on-line forum that provides information and support for people affected by cancer. The purpose is to provide a reliable, secure and useful meeting place for cancer patients, carers, survivors, friends and relatives, to help them support each other. The home page links to the Cancer Council NSW website, which connects to a wide range of information and support services. (This site comes under the responsibility of Cancer Council NSW).
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Leukaemia Foundation of Australia (Australia)
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The Leukaemia Foundation is a not-for-profit organisation that aims to provide information and support to patients and their families living with leukaemia, lymphoma, myeloma and related blood diseases. This website includes their publications on the different diseases and treatments in a number of languages. It also has information on the support services the organisation provides in Victoria, including practical assistance with accommodation and transport.
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Leukaemia Foundation’s on-line support and information forum (Australia)
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A moderated virtual support group for patients, families, and carers living with leukaemia, lymphomas, myeloma and other related blood disorders—allows participation in discussion forums with others going through similar situations related to blood cancers and their treatment.
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Andrology Australia (Australia)
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Andrology Australia website provides on-line access to information about male reproductive health. This site will provide information to men, their partners and families and health professionals.
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The National Cancer Institute (US)
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The NCI’s comprehensive cancer website contains information for patients and health professionals on the different types of cancer. Under the section “Survivorship - Living with and Beyond Cancer” it discusses life and health after a cancer diagnosis and once treatment is over.
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American Cancer Society Cancer Survivors Network (US)
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CSN (Cancer Survivors Network) is an on-line community of cancer survivors, families and friends. This site is completely non-commercial and provides a private, secure way to find and communicate with others in the CSN community.
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The Coalition of Cancer Survivorship (US)
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The National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led cancer advocacy organization in the USA. The NCCS aims to empower cancer survivors.
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Cancer Council Victoria (Australia)
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Cancer Council Victoria is a not-for-profit organisation that funds cancer research and provides the community with a wide range of cancer services. Its website has comprehensive information and publications in several languages. Victorian support services are also listed, including ways to access relevant cancer support groups and financial assistance.
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The Lance Armstrong Foundation (US)
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The Lance Armstrong Foundation (LAF) provides practical information and tools for people living with cancer. It also contains patient stories and promotes research. The LAF was founded by the cyclist and cancer survivor Lance Armstrong.
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Beyond the Cure was created for survivors of childhood cancer. The mission of Beyond the Cure is to help childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that are ahead of them and to celebrate survivorship. Beyond the Cure is a program of The National Children's Cancer Society. One of the features of this site is The Late Effects Assessment Tool. It is a free interactive tool designed to prepare survivors for potential medical issues that may arise after treatment has ended and to offer strategies for maintaining overall health.
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The National Childhood Cancer Foundation (US)
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CureSearch National Childhood Cancer Foundation contains information for families of adolescents and young adults with cancer. It is dedicated to raising private funds for childhood cancer research for the Children's Oncology Group, the world's largest cooperative cancer research organization. Together, they are committed to conquering childhood cancer through scientific discovery and compassionate care.
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Memorial Sloan-Kettering cancer Centre (US)
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After your treatment you may have questions regarding your health. You may also be reflecting on your cancer experience, and have concerns and questions that you are now ready to consider. As one of the world's premier cancer centres, Memorial Sloan-Kettering Cancer Centre is committed to exceptional patient care, leading-edge research, and educational programs.
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Cancer Survival Toolbox (US)
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Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness. It is run by the National Coalition for Cancer Survivorship.
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Cure Search – Children’s Oncology Group (US)
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Along with others, The Children’s Oncology Group have developed the Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers. The purpose of these guidelines is to provide recommendations for screening and management of late effects.
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Through OncoLink you can get comprehensive information about specific types of cancer, survivorship plans, updates on cancer treatments and news about research advances. It is designed to make it easy for the general public to find the information that they want. If you click on the buttons or the underlined text with your mouse, you will go directly to your area of interest. The information is updated everyday and is provided at different levels, from introductory to indepth. If you are interested in learning about cancer, you will benefit from visiting OncoLink.
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The Leukemia & Lymphoma Society (US)
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The Leukemia and Lymphoma Society is a voluntary health organisation dedicated to funding blood cancer research, as well as providing education and support services in the U.S for leukaemia, lymphoma and myeloma patients’ and their families. The website is very comprehensive, and includes publications on long tern and late effects of treatment. It also has answers to frequently asked questions, recent publications, clinical trials and research findings.
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MacMillan Cancer Support (UK)
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MacMillan Cancer Support is a national cancer information and support service. The website has a section entitled ‘Living with and life after cancer.’ It has information and practical advice to help you cope with issues ranging from side effects of treatment and talking about cancer to managing your finances. It also provides access to their publications.
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CANCERVIVE is a Los Angeles based non profit organization. The Organization, founded in 1985 by childhood cancer survivor Susan Nessim-Keeney, is dedicated to providing support, public education and advocacy to those who have experienced this disease. Their mission is to assist survivors to reclaim their lives after cancer.
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www.livewire.org.au
| Livewire (Australia)
| This Australian online community is a social networking site for young people affected by a serious illness, chronic health condition or disability, and their siblings and parents . The site is divided into three communities: Livewire Members, Livewire Siblings and Livewire Parents. You can join the community that best suits your situation. Livewire features safe and secure moderated communities tailored especially for each group where members can chat online, meet other people who understand what they are going through, create a blog about themselves, play games, listen to the latest music, read articles created just for them and post forums to have their say.
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www.petermac.org/cancersurvivorship
| The Australian Cancer Survivorship Centre – A Richard Pratt Legacy
| The Australian Cancer Survivorship Centre – A Richard Pratt Legacy is a web-based centre. It is funded by Peter MacCallum Cancer Centre, The Pratt Foundation and the Victorian Department of Health. The Australian Cancer Survivorship Centre aims to help improve services and care for cancer survivors in Australia as well as focus on increasing awareness, especially about issues that affect survivors after their treatment ends. The information on this site is divided into four sections Health Professionals, Survivors, Family & Friends and Research. There are links to useful information and reliable websites.
| www.cancerdirectory.com.au
| Cancer Directory (Australia)
| This website is managed and maintained by NSW Cancer Council. It aims to make it easier to access credible cancer care resources from around Australia that have been published since 2000. The information covers a range of cancer-related subject areas and target audiences:
| - all common cancer types
- prevention, screening, early detection, treatment, advanced cancer, palliative care
- coping with cancer, including psychological needs such as emotional and practical support, grief loss, communication
- for women, men, children, adolescents, Aboriginal and Torres Strait Islander peoples, people from other culturally and linguistically diverse communities, people with disabilities and health professionals.
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