Below are links to a range of Haematology related information.
Drop in to the Australian Cancer Survivorship and Information Centre if you would like further information or have any questions or concerns about the information you have.
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Click here for general support information or treatment related information.
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| In the Australian Cancer Survivorship and Information Centre - A Richard Pratt Legacy, we have a range of DVDs for patients, families and friends. Some are available for loan whilst others can be viewed in the centre.
The Haematology DVDs that we have available are:
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| - Living with Leukaemias, Lymphomas, Myeloma and Related disorders: A guide for patients, carers and families
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| - Understanding Acute Leukaemia: A guide for patients, carers and families
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| - Understanding Chronic Myeloid Leukaemias and Chronic Lymphocytic Leukaemia: A guide for patients, carers and families
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| - Understanding Myelodysplastic Syndromes: A guide for patients, carers and families
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| - Understanding Myeloma: A guide for patients, carers and families
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| - Understanding Non Hodgkin Lymphoma: A guide for patients, carers and families
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| - Your Journey of Lymphoma Treatments
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Reliable Website Information
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| Information about your diagnosis and treatment can help you understand your disease and help you make decisions. There is a lot of information about various cancers and treatments available on the internet. Some of this is well researched and provides good information but some of it may not be correct.
When you read health information from the internet it is always important to ask the following questions. The answers to these questions will help you to decide if the information you are reading is reliable and up-to-date.
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| - Who wrote the information and what are their qualifications?
- Where did the information come from?
- When was it written?
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| Peter Mac does not guarantee the accuracy, completeness or timeliness of the information provided by these organisations. We encourage you to discuss any information you have found on the listed sites or other sites with your health care team.
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| For information about other reliable cancer websites click this link. This page contains links to websites such as Cancer Council Victoria, Canteen, Carers Victoria, MacMillan Cancer Support (UK) and Palliative Care Victoria as well as many others. On some these sites you can find information about specific cancers and cancer treatment, in particular the MacMillan Cancer Support (UK) site.
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Recommended Haematology Websites:
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www.leukaemia.com
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Leukemia Foundation of Australia (Australia)
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The Leukaemia Foundation is a not-for-profit organisation that aims to provide information and support to patients and their families living with leukaemia, lymphoma, myeloma and related blood diseases. This website has information on statistics and their publications on the different diseases and treatments in a number of languages. It also has information on the support services the organisation provides in Victoria, including practical assistance with accommodation and transport.
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www.talkbloodcancer.com
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Leukaemia Foundation’s online support and information forum (Australia)
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A moderated virtual support group for patients, families, and carers living with leukaemia, lymphomas, myeloma and other related blood disorders—allows participation in discussion forums with others going through similar situations related to blood cancers and their treatment.
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www.lrf.org.uk/
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Leukaemia Research Fund (UK)
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The Leukaemia Research Fund is a charity dedicated to research and the treatment and support of patients and families living with leukaemia, the lymphomas, myeloma, anaplastic anaemia, myelodysplasia, myeloproliferative disorders and related blood disorders in both adults and children. Their publications on the different diseases and treatments are on this website which also has information on clinical trials and links to other relevant websites.
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www.leukemia-lymphoma.org
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The Leukaemia and Lymphoma Society (US)
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The Leukemia and Lymphoma Society is a voluntary health organisation dedicated to funding blood cancer research, as well as providing education and support services in the U.S for leukaemia, lymphoma and myeloma patients’ and their families. The website is very comprehensive, and includes their publications on the different diseases and treatments. It also has answers to frequently asked questions, recent publications, clinical trials and research findings.
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www.bonemarrow.org
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Bone Marrow Foundation (US)
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The Bone Marrow Foundation is based in the U.S, and provides information and support to patients and families throughout the transplant process. The website has allogeneic and autologous transplant information and publications on registration with the organisation.
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www.bmtnet.org
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Bone Marrow Transplant Network (US)
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This website is sponsored by seven international blood and marrow transplant organizations. It provides health professionals and patients with a direct link to each of their websites and access to a comprehensive array of resources on transplantation issues.
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www.aabb.org/
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American Association of Blood Banks (US)
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This site contains information on blood components and specific information about receiving blood transfusions.
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Recommended Lymphoma Websites:
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www.lymphoma.org
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Lymphoma Research Foundation (US) (LRF)
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The LRF is a voluntary health organisation dedicated to funding lymphoma research and providing patients, their families and health professionals with information on the disease. Their website is very comprehensive and provides detailed information on the lymphomas.
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www.lrf.org.uk/
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Cutaneous Lymphoma Foundation (UK)
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The Cutaneous Lymphoma Foundation is an independent, non-profit organization supporting people with cutaneous lymphoma through awareness, education, the advancement of patient care and research. Site includes information about cutaneous lymphoma, publications, information on clinical trials, treatment, and research as well as a section for physicians. Under the heading “About CLF there is a glossary of terms.
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www.iwmf.com
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International Waldenstrom’s Macroglobulinemia Foundation (US)
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The purpose of the Foundation is to provide information, resources and a communication network for patients with Waldenstrom’s, their families and health professionals. Their website provides access to excellent resources specific to the disease.
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Recommended Myeloma Websites:
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www.myeloma.org.au
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Myeloma Foundation of Australia (Australia)
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The Myeloma Foundation aims to provide information and support to those who are living with and affected by myeloma. The website contains information on the disease and details the services provided through Myeloma Victoria.
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www.myeloma.org
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International Myeloma Foundation (US)
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The International Myeloma Foundation aims to provide information and support to those affected by myeloma, as well as promoting research and education.
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www.amyloidosis.com.au
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Amyloidosis Australia (Australia)
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This website has been set up by people who have lived with a family member who had Primary Amyloidosis and set up a support group in Melbourne. It provides information on Amyloidosis that they have researched and links to other resources.
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www.petermac.org/cancersurvivorship
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy is a web-based centre. It is funded by Peter MacCallum Cancer Centre, The Pratt Foundation and the Victorian Department of Health. The Australian Cancer Survivorship Centre aims to help improve services and care for cancer survivors in Australia as well as focus on increasing awareness, especially about issues that affect survivors after their treatment ends. The information on this site is divided into four sections Health Professionals, Survivors, Family & Friends and Research. There are links to useful information and reliable websites.
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www.cancerdirectory.com.au
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Cancer Directory (Australia)
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This website is managed and maintained by NSW Cancer Council. It aims to make it easier to access credible cancer care resources from around Australia that have been published since 2000. The information covers a range of cancer-related subject areas and target audiences:
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- all common cancer types
- prevention, screening, early detection, treatment, advanced cancer, palliative care
- coping with cancer, including psychological needs such as emotional and practical support, grief loss, communication
- for women, men, children, adolescents, Aboriginal and Torres Strait Islander peoples, people from other culturally and linguistically diverse communities, people with disabilities and health professionals.
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