Below are links to a range of Bone & Soft Tissue Cancer related information.
Drop in to the Australian Cancer Survivorship and Information Centre if you would like further information or have any questions or concerns about the information you have.
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Click here for general support information or treatment related information.
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Reliable Website Information
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| Information about your diagnosis and treatment can help you understand your disease and help you make decisions. There is a lot of information about various cancers and treatments available on the internet. Some of this is well researched and provides good information but some of it may not be correct.
When you read health information from the internet it is always important to ask the following questions. The answers to these questions will help you to decide if the information you are reading is reliable and up-to-date.
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| - Who wrote the information and what are their qualifications?
- Where did the information come from?
- When was it written?
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| Peter Mac does not guarantee the accuracy, completeness or timeliness of the information provided by these organisations. We encourage you to discuss any information you have found on the listed sites or other sites with your health care team.
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| For information about other reliable cancer websites click this link. This page contains links to websites such as Cancer Council Victoria, Canteen, Carers Victoria, MacMillan Cancer Support (UK) and Palliative Care Victoria as well as many others. On some these sites you can find information about specific cancers and cancer treatment, in particular the MacMillan Cancer Support (UK) site.
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Recommended Sarcoma Websites
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www.rainbowsforkate.com.au
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Rainbows for Kate Foundation (Australia)
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The Rainbows for Kate Foundation has been established to specifically address the current lack of knowledge and understanding in relation to Sarcoma cancers. Their objective is to raise money for the purpose of enabling research into this particularly aggressive cancer. There are links to information about sarcoma, current research and patient/family stories.
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www.sarcomahelp.org
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Sarcoma Help (US)
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The mission of the Liddy Shriver Sarcoma Initiative is to improve the quality of life for people dealing with sarcoma. The site contains a ‘Sarcoma Learning Centre’ which links to comprehensive information about types of sarcoma, diagnosis and treatment. There is also a link to the Electronic Sarcoma Update Newsletter (ESUN), an online, peer reviewed journal that contains articles of interest to patients, caregivers, and health care professionals.
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www.australiansarcomagroup.org
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The Australian Sarcoma Study Group (Australia)
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The Australian Sarcoma Study Group (ASSG) is a clinical research co-operative group which aims to improve outcomes for sarcoma and related tumours in the Australian community, by undertaking outstanding international basic, translational, clinical and supportive care research. The website is a resource for patients, families, carers, clinicians and health professionals who are seeking information about sarcoma and current research or wish to contact a specialist or to find out how to make a difference.
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www.petermac.org/cancersurvivorship
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy
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The Australian Cancer Survivorship Centre – A Richard Pratt Legacy is a web-based centre. It is funded by Peter MacCallum Cancer Centre, The Pratt Foundation and the Victorian Department of Health. The Australian Cancer Survivorship Centre aims to help improve services and care for cancer survivors in Australia as well as focus on increasing awareness, especially about issues that affect survivors after their treatment ends. The information on this site is divided into four sections Health Professionals, Survivors, Family & Friends and Research. There are links to useful information and reliable websites.
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www.cancerdirectory.com.au
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Cancer Directory (Australia)
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This website is managed and maintained by NSW Cancer Council. It aims to make it easier to access credible cancer care resources from around Australia that have been published since 2000. The information covers a range of cancer-related subject areas and target audiences:
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- all common cancer types
- prevention, screening, early detection, treatment, advanced cancer, palliative care
- coping with cancer, including psychological needs such as emotional and practical support, grief loss, communication
- for women, men, children, adolescents, Aboriginal and Torres Strait Islander peoples, people from other culturally and linguistically diverse communities, people with disabilities and health professionals.
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